7 evidence-based principles based on the law and what research tells us works best to support young people.

Families and carers need support

We will therefore continue to support existing sources of good information so these can remain available to young people, parents, carers and practitioners.
— National Transitions Strategy for Young Disabled People

The Principle

Families and carers need support

Why this Principle matters

Behind every young person is a parent, carer, sibling or family member. Working in a person-centred way means considering the views of everyone and the impact that transition from school may have on them.  

In many cases of young people with additional support needs, parents and carers are the only voice in their transition planning. Parents and carers report that it is difficult to balance the responsibilities for their child with their own needs and require access to respite and support for themselves.  

It is not always easy to represent the views of their child so advocacy should be available for both the young person and their family, particularly at moments of transition and change.  

TBC
— Young person

What this Principle can look like

Good practice means:

  • Parents and carers know what rights they have and how to exercise them
  • Parents and carers are satisfied with the support they receive, and are able to balance their own needs with their other responsibilities
  • Young people, parents and carers know how to access advocacy services if they wish to

Effective support for families and carers means:
1. Family well-being needs are supported

Young people’s relationships with their family can be complex, particularly where parents or carers have an on-going role in providing personal assistance and where disability related allowances or benefits are an important contribution to the household income.  The needs and roles of family members and carers are also likely to change as the young person they care for grows up.  Parents and carers are usually central to the continuing care of young people with additional support needs.

Parents have reported that, where they exist, peer support networks are highly valued.  However, networks developed while children are at school can be difficult to maintain after they leave.  The ability of parents and carers to maintain or establish peer support should be considered in the development of support packages for young people. Good practice would ensure that these support networks are maintained and fully supported.

2. Advocacy should be available at the start and throughout transitions

Best practice suggests advocacy should be available to all young people and carers involved in the transitions process, particularly if they have concerns about having their voices heard.  It should not only be available when hard decisions have to be made.  

The offer of advocacy should be made at the start of transition, age 14, and be available at least to age 25.  This is especially relevant for those who are looked after, care-experienced, and those being considered for a Guardianship Order.

Building this Principle into your strategies

Long-term and sustainable improvements are most likely to be achieved with a joint commitment to improvement between agencies at a local authority level.  Strategic leads can shape improvement through the use of data collection which evaluates:

  • If parents and carers understand and can exercise their rights
  • If they are happy with the support available
  • If parents and carers know about advocacy services in their area

This data can be collected through Compass and local authority reports available if a data sharing agreement is in place.

‘Principles into Practice’ is a programme to help those with strategic responsibility for transitions to design and oversee approaches which will improve the experiences of transition for young people with additional support needs. It has been widely adopted by local authorities in Scotland and can help with the evaluation of current practices to make improvement.  

Contact us to discuss the support available.

Resources related to Principle

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Legislation and policy underpin the provision of this principle and establish the duties and requirements of professionals to ensure that parents and carers get the support they need to care for their young person and act in their best interests. The SIAA is an agency which connects people with local advisory groups.
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